Launched on the first World Encephalitis Day, 22nd February 2014, we formed this trust primarily to raise desperately needed funds to provide training for adults working with children affected by Encephalitis and Acquired Brain Injury (ABI), to fund research in to Childhood Encephalitis and help families and carers when they need it most.
We do this by being able to raise funds and directing them specifically for this purpose. Other objectives are to fund research in to Encephalitis in Children and raise awareness of this debilitating, life changing illness. Our daughter Eden was left with ABI following Encephalitis in March 2011. Encephalitis and ABI affects every sufferer differently and is often a silent condition as there may be no obvious physical signs. If an adult has an ABI they are offered rehabilitation, however for most children their rehabilitation is school…unfortunately most schools and teaching staff, although usually willing, are not equipped with knowledge of the condition and how to support the complexities of an ABI. There are some amazing training courses and great help available, not just for professionals but for children, families and carers, but sadly a lack of funding means that often these helpful and life-changing tools cannot be accessed. One of our aims is to help fund these fantastic services to help as many people as possible. We will be funding research in to Childhood Encephalitis too, as there is so little known yet so many more sufferers. To see how you can help, please click here. Thanks for supporting us. We couldn’t do it without you!