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What is Encephalitis?
• Encephalitis is inflammation or swelling of the brain
• Childhood Encephalitis usually results in an Acquired Brain Injury (ABI) which can cause long term physical and cognitive problems
• Affecting over 6,000 people a year in the UK alone
• Anyone of any age or any background can get Encephalitis at any time
How we help
• Personally support families going through Encephalitis
• Raise awareness
• Fund research into causes, diagnoses & treatments
• Fund training for those involved with the ongoing care and rehabilitation of children with life changing Acquired Brain Injuries
Matty’s story
“Encephalitis is still so unheard of by so many people, yet it is just as life threatening as, if not more than, meningitis… The support from people who have been there is genuinely invaluable. It’s not a faceless charity, you know their knowledge is first-hand, and it means the world to know that there are people there for you.” Matty’s Mum
New Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
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Launching the ‘ABI Return’ Booklet
We are incredibly excited to announce the launch of a brilliant new resource from the National ABI Education and Learning Syndicate (N-ABLES), which the Eden Dora Trust are proud to have helped fund. The booklet is free-to-access and will help professionals involved in supporting children and young people with an Acquired Brain Injury to ...
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EDT Study Morning 2021!
On 6th May 2021 we had a great turnout of attendees for the virtual return of our EDT Study Morning. We hosted a panel of amazing professional experts and discussed how we can proactively help and support children and families with Acquired Brain Injury (ABI) after Encephalitis. Couldn’t attend on the day? Re-watch the ...
Read MoreNew Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
Read MoreLaunching the ‘ABI Return’ Booklet
We are incredibly excited to announce the launch of a brilliant new resource from the National ABI Education and Learning Syndicate (N-ABLES), which the Eden Dora Trust are proud to have helped fund. The booklet is free-to-access and will help professionals involved in supporting children and young people with an Acquired Brain Injury to ...
Read MoreEDT Study Morning 2021!
On 6th May 2021 we had a great turnout of attendees for the virtual return of our EDT Study Morning. We hosted a panel of amazing professional experts and discussed how we can proactively help and support children and families with Acquired Brain Injury (ABI) after Encephalitis. Couldn’t attend on the day? Re-watch the ...
Read More
Skydive Extravaganza!
Calling all our adventurous supporters to #Jump4EDT! We are excited to be running our first ever group skydiving event to help us continue our vital support Who would like to join us on the 17th July 2021 for a a group sky dive? It is open to anyone in the UK, just click ...
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Huge Christmas Giveaway!!
We are doing an incredible Christmas Giveaway with an amazing double layered luxury hamper from Chatsworth and a ton of Yorkshire Tea – all worth over £200!! Donate now to to be in with a chance of winning! Donate Here This year has been incredibly hard for everyone, so we decided that in time for ...
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Co-op Local Charity!
We are over the moon to announce that we have been chosen as one of the charitable organisations to benefit from the Co-op Local Community Fund this year. Please show us your support and help us to raise vital funds so we can continue supporting Children with Encephalitis and Brain Injuries – at no extra ...
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Louis Tomlinson
I had never heard of Encephalitis or acquired brain injury until I met Eden.
Paul Wait
I was stunned to hear Eden’s story when Phil first told me and had never heard of the illness.
Paul Dickov
I was so honoured to be invited to become a Patron of this wonderful charity.
Andrew Flintoff
I am both thrilled and proud to have become a Patron of The Eden Dora Trust
Joe Hart
I consider it a great privilege to be a Patron of The Eden Dora Trust.
LATEST TWEETS
KEEP UP TO DATE WITH OUR LATEST FROM TWITTER
Thanks @editorNRTimes for helping to get the word out about our new #ReturnToEd guidance. #ChildhoodABI #SchoolisRehab #WorkingTogether #TimeForChange @Childrens_Trust @EdenDoraTrust @UKABIF @irwinmitchell https://twitter.com/editorNRTimes/status/1406976001360474115
Teachers across the UK are receiving new advice on how to make the return to school process easier for children affected by #ABI
@UKABIF @NABLES10 @Childrens_Trust
https://www.nrtimes.co.uk/new-guidance-for-teachers-on-abi-children-returning-to-school/
Well said @louwilkie !
If you would like more information on our #ABIAwareSchool award initiative that we launched in collaboration with @cbituk - Please do get in touch
#ABI #Encephalitis #EducationForAll #collaboration #teamwork
ABI Aware Schools Award.
Wondering what this is and how it works?
Here is Louise Wilkinson giving an overview about the initiative that we recently launched in collaboration with @EdenDoraTrust.
https://vimeo.com/565539809/3bcf0bf878
More info here:
https://childbraininjurytrust.org.uk/abi-aware-schools-award/
#ABIAwareSchool
If you are interested in learning more about #CYP & #braininjury in the UK some groups to follow are: @cbituk @NABLES10 @EdenDoraTrust @encephalitis @NeuroAlliance @SUCCESS_Charity @Childrens_Trust @youngepilepsy @diffstrokes @HeadSmartUK @CCLG_UK @BrainInjuryHub
Ever fancied a skydive?! 🪂 LAST CHANCE to register your interest and join us as we #Jump4EDT this July!
REGISTER NOW 👇
https://edendoratrust.org/sky-dive-for-edt/
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