** Covid-19 **
During these unprecedented times of the Covid -19 pandemic, for anyone that is worried or anxious about their child… click here to read more
What is Encephalitis?
• Encephalitis is inflammation or swelling of the brain
• Childhood Encephalitis usually results in an Acquired Brain Injury (ABI) which can cause long term physical and cognitive problems
• Affecting over 6,000 people a year in the UK alone
• Anyone of any age or any background can get Encephalitis at any time
How we help
• Personally support families going through Encephalitis
• Raise awareness
• Fund research into causes, diagnoses & treatments
• Fund training for those involved with the ongoing care and rehabilitation of children with life changing Acquired Brain Injuries
Matty’s story
“Encephalitis is still so unheard of by so many people, yet it is just as life threatening as, if not more than, meningitis… The support from people who have been there is genuinely invaluable. It’s not a faceless charity, you know their knowledge is first-hand, and it means the world to know that there are people there for you.” Matty’s Mum
Winter Ball is Back in 2022!
We are so excited to announce that our Winter Ball is back this year on Friday 18th November 2022! Our annual winter ball has always been an amazing event, full of fun, laughter, and dancing; raising an incredible £40,000 for The Eden Dora Trust last time around. We are so excited that this brilliant event is ...
Read More
New Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
Read More
CBIT Diamond Collaboration Award
We are all absolutely over the moon to have received this diamond Collaboration award from the Child Brain Injury Trust Thank you so much for this recognition of our amazing work together, and what a great night It was wonderful to be with so many inspiring people, all working to make a difference You ...
Read MoreWinter Ball is Back in 2022!
We are so excited to announce that our Winter Ball is back this year on Friday 18th November 2022! Our annual winter ball has always been an amazing event, full of fun, laughter, and dancing; raising an incredible £40,000 for The Eden Dora Trust last time around. We are so excited that this brilliant event is ...
Read MoreNew Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
Read MoreCBIT Diamond Collaboration Award
We are all absolutely over the moon to have received this diamond Collaboration award from the Child Brain Injury Trust Thank you so much for this recognition of our amazing work together, and what a great night It was wonderful to be with so many inspiring people, all working to make a difference You ...
Read More
Our 8th Birthday!
The Eden Dora Trust for Children with Encephalitis turn 8 today! We launched on the very first World Encephalitis Day, and we are so proud of all that we are accomplishing … and we couldn’t do any of it without you The funds you raise with your bake sales, marathons, any-clothes days, collection ...
Read More
Our first Skydive!
We just held our first in-person event for over 18 months! We are absolutely over the moon that last Saturday we held our very first Eden Dora Trust skydive event and wow what a fantastic day! All of the incredible people that came to #JumpForEDT and supporters had a superb time, the atmosphere was fantastic There ...
Read More
Launching the ‘ABI Return’ Booklet
We are incredibly excited to announce the launch of a brilliant new resource from the National ABI Education and Learning Syndicate (N-ABLES), which the Eden Dora Trust are proud to have helped fund. The booklet is free-to-access and will help professionals involved in supporting children and young people with an Acquired Brain Injury to ...
Read More
EDT Study Morning 2021!
On 6th May 2021 we had a great turnout of attendees for the virtual return of our EDT Study Morning. We hosted a panel of amazing professional experts and discussed how we can proactively help and support children and families with Acquired Brain Injury (ABI) after Encephalitis. Couldn’t attend on the day? Re-watch the ...
Read More
Louis Tomlinson
I had never heard of Encephalitis or acquired brain injury until I met Eden.
Paul Wait
I was stunned to hear Eden’s story when Phil first told me and had never heard of the illness.
Paul Dickov
I was so honoured to be invited to become a Patron of this wonderful charity.
Andrew Flintoff
I am both thrilled and proud to have become a Patron of The Eden Dora Trust
Joe Hart
I consider it a great privilege to be a Patron of The Eden Dora Trust.
LATEST TWEETS
KEEP UP TO DATE WITH OUR LATEST FROM TWITTER
Here is a really important study about understanding #Fatigue after a young person has an #ABI
If you have 30mins please help
Thank you 🙏
Are you a young person with #ABI or their or a parent/carer? We would love to get you involved in a study exploring experiences of #fatigue after #braininjury Please see 👇 poster and get in touch if you are interested @NABLES10 @EdenDoraTrust @cbituk @Childrens_Trust @RecoloUK
We are so proud to fund these vital ‘Understanding Childhood Acquired Brain Injury’ workshops by @cbituk - with the next one on 29 & 30 June 🧠
Find out more here 👇
https://edendoratrust.org/ucabi-workshops/
#UCABI #ABI #Encephalitis #education #educationforall #TeamWork
Our next virtual workshop for professionals is coming up at the end of this month. Click the link for more info and/or to book your place.
📅 29th & 30th June
⏰ 9:30 - 12:30
📚 6.5 hours CPD
🔗 https://childbraininjurytrust.org.uk/events/2022-june-virtual-workshop-understanding-childhood-acquired-brain-injury/
These workshops are kindly supported by @EdenDoraTrust 💜
This week is #LearningDisabilityWeek in the #UK.
We offer a range of FREE resources for #teachers and #SENCO's to support children struggling in the classroom due to a #BrainInjury.
For more info, visit our website: http://UKABIF.org.uk/NABLES
🌟 New paper: Absolutely delighted to see our paper on understanding mood disorders following paediatric #braininjury with Dr Henrietta Roberts, @DrS_Reynolds @Tamsin_J_Ford @AnkeKarl in print (open access) - https://www.frontiersin.org/articles/10.3389/fnhum.2022.835897/full?&utm_source=Email_to_authors_&utm_medium=Email&utm_content=T1_11.5e1_author&utm_campaign=Email_publication&field=&journalName=Frontiers_in_Human_Neuroscience&id=835897
Take a look at our latest article in the Brain & Spinal Injuries Handbook 22/23. Our Head of Brain Injury Services @CbitGerard looks at the impact of poor mental health services on a child's developing brain.
To view the article online, please click here: https://issuu.com/sevenstarmedia/docs/b_si_2022_digital260522/22
© 2021. All Rights Reserved. The Eden Dora Trust for children with Encephalitis. Registered Charity Number: 1152507
Privacy Policy