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What is Encephalitis?
• Encephalitis is inflammation or swelling of the brain
• Childhood Encephalitis usually results in an Acquired Brain Injury (ABI) which can cause long term physical and cognitive problems
• Affecting over 6,000 people a year in the UK alone
• Anyone of any age or any background can get Encephalitis at any time
How we help
• Personally support families going through Encephalitis
• Raise awareness
• Fund research into causes, diagnoses & treatments
• Fund training for those involved with the ongoing care and rehabilitation of children with life changing Acquired Brain Injuries
Matty’s story
“Encephalitis is still so unheard of by so many people, yet it is just as life threatening as, if not more than, meningitis… The support from people who have been there is genuinely invaluable. It’s not a faceless charity, you know their knowledge is first-hand, and it means the world to know that there are people there for you.” Matty’s Mum
Winter Ball is Back in 2022!
We are so excited to announce that our Winter Ball is back this year on Friday 18th November 2022! Our annual winter ball has always been an amazing event, full of fun, laughter, and dancing; raising an incredible £40,000 for The Eden Dora Trust last time around. We are so excited that this brilliant event is ...
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New Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
Read MoreNew Bespoke Power of Attorney Resource
We are very happy to announce that we have now produced, in collaboration with Freeths LLP, a brand-new resource just for The Eden Dora Trust, giving information about Lasting Power of Attorneys and how to continue supporting children and young people after they turn 18 years old. To find out more or download this ...
Read MoreWinter Ball is Back in 2022!
We are so excited to announce that our Winter Ball is back this year on Friday 18th November 2022! Our annual winter ball has always been an amazing event, full of fun, laughter, and dancing; raising an incredible £40,000 for The Eden Dora Trust last time around. We are so excited that this brilliant event is ...
Read MoreNew Ambassador: Emily Maitlis!
“I am proud to support the terrific work of The Eden Dora Trust – providing valuable help for children and families affected by Encephalitis…” We are so excited to announce Emily Maitlis as our newest official ambassador! Emily is an incredible, inspiring woman, and we are overjoyed to welcome her to team EDT ...
Read MoreNew Bespoke Power of Attorney Resource
We are very happy to announce that we have now produced, in collaboration with Freeths LLP, a brand-new resource just for The Eden Dora Trust, giving information about Lasting Power of Attorneys and how to continue supporting children and young people after they turn 18 years old. To find out more or download this ...
Read More
CBIT Diamond Collaboration Award
We are all absolutely over the moon to have received this diamond Collaboration award from the Child Brain Injury Trust Thank you so much for this recognition of our amazing work together, and what a great night It was wonderful to be with so many inspiring people, all working to make a difference You ...
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Our 8th Birthday!
The Eden Dora Trust for Children with Encephalitis turn 8 today! We launched on the very first World Encephalitis Day, and we are so proud of all that we are accomplishing … and we couldn’t do any of it without you The funds you raise with your bake sales, marathons, any-clothes days, collection ...
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Our first Skydive!
We just held our first in-person event for over 18 months! We are absolutely over the moon that last Saturday we held our very first Eden Dora Trust skydive event and wow what a fantastic day! All of the incredible people that came to #JumpForEDT and supporters had a superb time, the atmosphere was fantastic There ...
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Launching the ‘ABI Return’ Booklet
We are incredibly excited to announce the launch of a brilliant new resource from the National ABI Education and Learning Syndicate (N-ABLES), which the Eden Dora Trust are proud to have helped fund. The booklet is free-to-access and will help professionals involved in supporting children and young people with an Acquired Brain Injury to ...
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Louis Tomlinson
I had never heard of Encephalitis or acquired brain injury until I met Eden.
Paul Wait
I was stunned to hear Eden’s story when Phil first told me and had never heard of the illness.
Paul Dickov
I was so honoured to be invited to become a Patron of this wonderful charity.
Andrew Flintoff
I am both thrilled and proud to have become a Patron of The Eden Dora Trust
Joe Hart
I consider it a great privilege to be a Patron of The Eden Dora Trust.
LATEST TWEETS
KEEP UP TO DATE WITH OUR LATEST FROM TWITTER
Paul is taking on the mammoth challenge of running 26.2 miles round London!
He's been busy raising funds for us whilst training for his @LondonMarathon - we are so grateful & proud!
To support Paul with his incredible task👇
https://www.justgiving.com/fundraising/Paul-Hardy24
#Encephalitis #ABI #Marathon
#IPBIS2022 Poster session - there was so much amazing work to see! We were pleased to be sharing #ABIReturn with @NABLES10 and team commitments to addressing hidden social inequalities in paediatric rehabilitation @Childrens_Trust @JennyJim8 @timgrove26 @WalesLorna
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Looking forward to this & there are a few tables left @OurCowMolly @BBCSheffield @HendoRelish @SheffieldLyceum x https://twitter.com/EdenDoraTrust/status/1573250829674418176
If you didn’t know… our flagship winter ball is back!🤗
And we are so excited to announce that our compere for the evening is – the legendary actor & panto dame @djwilliamsact !
We have a few tables available – More info /book your table 👉 https://edendoratrust.org/winter-ball-2022/
If any educational professionals are looking for some helpful pointers & advice on inclusive teaching strategies, please check out these videos by @WholeSchoolSEND. Included is a valuable introduction to #ABI video featuring @cbitlisa @EmBennett78 @NABLES10 #ABIinEducation https://twitter.com/WholeSchoolSEND/status/1567754928973647873
Have you met your new classes yet? Getting to know learners & their different approaches to learning takes time. Our Condition Specific Videos provide helpful pointers, techniques and advice on inclusive teaching strategies. FREE access:
https://www.wholeschoolsend.org.uk/page/condition-specific-videos
#SEND
#Inclusion
Thanks so much to everyone who joined our #IPBIS2022 Roundtable on #ReturntoEdafterABI and engaging policy makers. Great to hear from colleagues around the world. If you are keen to be part of future conversations, please let us know on nables@ukabif.org.uk @IPBIS #collaboration
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