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Resources

Here you can access a wide range of resources created for The Eden Dora Trust by expert professionals across fields including education, healthcare, and law.

Our resources are here to offer you information on countless aspects of Encephalitis and Acquired Brain Injury, and ultimately to help facilitate the increased support of children and families on both personal and professional levels.

If you would like to find out more about anything you read here, you would like to get involved and create a resource for us to offer, or if you/your workplace would like to stock any of our resources, please email us at contact@edendoratrust.org

The ABI Aware School Award

This invaluable new initiative will work with schools and academies to help them develop their knowledge and understanding of ABI, allowing them to provide the best possible environment and educational setting for children with ABIs, and showing parents where the best possible choices for their child are…
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Returning To School During COVID-19

Now that children and young people have returned to school following lockdown, many have enjoyed seeing their friends and teachers, and returning to classroom learning again, but others may still feel unsure about all of the changes, particularly with schools being set up very differently in order to allow for social distancing. For children with an ABI, this may be even more challenging, as they may often have additional difficulties in understanding, processing, or managing changes to routines at school and at home, as well as in managing the transition back to school-based-education after a long period of time at home…
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What is a Lasting Power of Attorney?

Once a child reaches 18, they are legally classed as an adult. This means that they will be treated as being able to make their own decisions in respect of their health and financial decisions unless it is deemed that they lack the mental capacity to do so. Their parents or legal guardians will no longer have the authority to act on their behalf. However, children with an ABI can often need more support than other children their age when making decisions regarding their health or finances, or they may not have the mental capacity to deal with these decisions at all.
At the Eden Dora Trust, we know just how overwhelming it can feel when your child is about to reach adulthood with lots of things to consider. We are here to explain to you: it is a lot easier than you think to put things in place to protect your young person’s affairs and their future…
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‘Understanding Childhood ABI’ Workshops

We are proud to fund an amazing workshop, run by the Child Brain Injury Trust, which provides interactive sessions exploring the issues facing children, young people, and their families following childhood ABI…

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Cognitive, Emotional, Behavioural, & Social Impacts

All children are individual and it is important to acknowledge that the outcome of Encephalitis can vary from a largely full recovery to significant physical, cognitive, emotional and social difficulties due to a number of contributing factors such as severity of the illness, area of the brain affected…

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Educational Health and Care Plan (EHCP) Guide

If your child has a learning difficulty which calls for special educational provision to be made then they may benefit from an EHCP. EHCP’s identify educational, health and social care needs and set out the provision that needs to be put in place to meet those needs, the local authority are then under a legal duty to deliver any educational provision set out…

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‘Getting to Know Childhood Encephalitis’ Booklet

We have published an incredibly helpful Guidebook which provides a detailed understanding of absolutely everything one could need to know about Childhood Encephalitis and ABI, and every step you can take following a diagnosis..

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Sleep Deprivation

Sleep deprivation can hugely impact the physical, emotional and mental wellbeing of children with Encephalitis and an ABI. All children are unique, and different techniques work for different families. Sleep habits need to be learnt, like learning to eat and walk.  Therefore it is important to learn and enforce this general advice to begin with by being consistent and firm…
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The Paediatric Rehabillitation Toolkit

Launched 27th September 2018, and updated again in 2021, produced together with The IPBIS (International Pediatric Brain Injury Society), and funded entirely by The Eden Dora Trust, we have published a rehabilitation guidance ‘Toolkit’ containing an overview of a wide range of tools and programmes available for use by health professionals across the world…
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Returning To School

For some children who have recovered with few or no ongoing difficulties, returning to school may pose few challenges. However, depending on the severity of a child’s illness and the amount of time they have been away from education, returning to school after Encephalitis can often feel like a daunting step in a child’s journey of recovery…
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ABI Return: Guiding the Return to Education’ Booklet

We are proud to have helped fund and worked collaboratively with N-ABLES, to produce a brilliant new resource from the UK Acquired Brain Injury Forum (UKABIF) and the National ABI Education and Learning Syndicate (N-ABLES)

Launched on 13th May 2021, the booklet is free-to-access and will help professionals involved in supporting children and young people with an Acquired Brain Injury to prepare for, and achieve, a successful return to education and to help progress their recovery…
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Encephalitis Information Leaflet

Here you can find our Encephalitis information leaflet – a brilliant and useful introductory resource for both personal and workplace use, describing what Encephalitis is, who the Eden Dora Trust are, what we do as a charity, and how you can get in touch with us to find out more…
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EDT Study Day

Here are two of our incredibly informative days of learning and discussion covering many topics about ABI and life post-Encephalitis, led by panels of amazing industry experts. Keep an eye out for our announcements about when our next upcoming study days will be taking place, and for now you can view the videos below to get a glimpse of how the sessions went…
Learn more (2021 study morning)
Learn more (2019 study day)