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What is Encephalitis?
• Encephalitis is inflammation or swelling of the brain
• Childhood Encephalitis usually results in an Acquired Brain Injury (ABI) which can cause long term physical and cognitive problems
• Affecting over 6,000 people a year in the UK alone
• Anyone of any age or any background can get Encephalitis at any time
How we help
• Personally support families going through Encephalitis
• Raise awareness
• Fund research into causes, diagnoses & treatments
• Fund training for those involved with the ongoing care and rehabilitation of children with life changing Acquired Brain Injuries
Matty’s story
“Encephalitis is still so unheard of by so many people, yet it is just as life threatening as, if not more than, meningitis… The support from people who have been there is genuinely invaluable. It’s not a faceless charity, you know their knowledge is first-hand, and it means the world to know that there are people there for you.” Matty’s Mum
Our Patrons & Ambassadors
Hover over each image to find out more
When asked if I would consider becoming a patron of their charity, I was honoured, there was no doubt in my mind and of course I said yes…
Louis Tomlinson
It is my honour to have been asked and I want to do all I can to help. The work that The Eden Dora Trust does …
Jimmy White M.B.E.
I had never heard of Encephalitis. It is one of those illnesses that hardly anyone knows anything about. I have since come to understand just how vital this charity is, and when they asked…
Andrew ‘Freddy’ Flintoff
I am absolutely thrilled to be asked to become a Patron of the Eden Dora Trust. From the moment I met …
Dan Hatfield
I’m proud to support the terrific work of the Eden Dora Trust – providing invaluable help for children and families…
Emily Maitlis
I was stunned when I was first told and had never heard of the illness. Then I started asking around and found quite a few people …
Paul Wait
I am delighted to be a patron of the Eden Dora Trust and to hopefully be a small part of creating more awareness of…
Damian Williams
We are now in full planning mode for the exciting return of our winter ball at @TheCutlersHall🎉
It's set to be a night of unforgettable moments, celebrating & bringing together the incredible community that supports our work💙
Find out more: https://edendoratrust.org/winter-ball-2026/
It's not too late if you'd like to join our challenge 💙
This is YOUR 50 miles for EDT-do it your way! 🫶
Run, hop, skip, wheel - or mix of all 🏃♀️🤸🏻♀️👨🦽➡️🏊♂️
https://edendoratrust.org/50-miles-in-...
Huge thanks as always for everyone that has already signed up
#Encephalitis #50Miles4EDT
Following the publication of the government’s consultation on SEND reform, @UKABIF has called for a commitment to ensure every school can meet the needs of children and young people with #AcquiredBrainInjury (ABI).
🔗 Read the full article here:
© 2026. All Rights Reserved. The Eden Dora Trust for children with Encephalitis. Registered Charity Number: 1152507
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